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Resources For Information On the Internet

Recommended Books

Resources For Supplies

 

This lymphedema resources and information page and the articles and links to other resources on the internet are provided as citations and aids to help you identify and locate information and other internet resources that may be of interest to you regarding lymphedema and/or breast cancer, and are not intended to state or imply that the StepUp-SpeakOut.Org group is affiliated or associated with, agrees with the site contents, or is legally authorized to use any trade name, registered trademark, logo, legal or official seal or copyrighted symbol that may be reflected in the links.

You should not act or rely on any information from any World Wide Web site without seeking the advice of your own physician or healthcare provider.  Lymphedema requires appropriate evaluation, treatment and education by a certified lymphedema therapist.

We do not endorse any specific information contained in these links, but merely offer them as publicly available information.

We are proud to have our StepUp-SpeakOut web site receive certification from the HonCode on the Net from the Health On the Net Foundation.

Resources For Information On the Internet

Medical References on our Site

SHARE Self-help for women affected by breast or ovarian cancer.

Lymphormation From the Journal of Lymphedema

(ALFP) American Lymphedema Framework Project  
ALFP - American Lymphedema Framework Project

(NLN) National Lymphedema Network 
www.lymphnet.org

LymphNotes
www.lymphnotes.com

Lymphedema Community
http://lymphedemacommunity.com

Lymphedema Today

http://acols.com/lymphedematoday/

The North American Lymphedema Education Association (NALEA)

Its member schools include the following:

LymphedemaPeople
www.lymphedemapeople.com

The Lebed Method
www.focusonhealing.net

The Northwest Lymphedema Center
www.nwlymphedemacenter.org

Lymphatic Research Foundation
www.lymphaticresearch.org

Stanford Center for Lymphatic and Venous Disorders
http://www.stanfordhospital.com/clinicsmedServices/COE/heart/DiseasesConditions/lymphaticvenous.html

American College of Oncology
http://www.asco.org/

UKLymph.com
http://www.uklymph.com/forums/index.php

Aussie Breast Cancer Forum
http://www.bcaus.org.au/forum/index.php

Lymphovenous Canada
http://www.lymphovenous-canada.ca/

Lymphoedema Association of Australia
http://www.lymphoedema.org.au

International Society of Lymphology
http://www.u.arizona.edu/~witte/ISL.htm

 Lymphedema Association of Ontario
http://lymphontario.org

Lymphedema Resources.Org
http://www.lymphedemaresources.org

Rehabilitation Associates of Naples
www.rehabnaples.com

Women's Health and Cancer Rights Act Information
http://www.cms.hhs.gov/HealthInsReformforConsume/06_TheWomen'sHealthandCancerRightsAct.asp#TopOfPage

No Surrender Breast Cancer Foundation
http://www.nosurrenderbreastcancerhelp.com/

Breast Reconstruction.org
http://www.breastreconstruction.org

Breast Free.org
http://www.breastfree.org

Fitness After Breast Cancer
http://www.recovercisesforwellness.com

Medicare and Disability Information

http://www.medicarerights.org/ (general information)

http://medicareadvocacy.org (practical and educational information)

 

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Recommended Books

 

Lymphedema: A Breast Cancer Patient's Guide to Prevention and Healing, by Jeannie Burt, Gwen White

From the Author
This new edition provides updates on the latest research and information on the cutting-edge products and techniques developed for treating lymphedema. Since excess weight has been found to play a role, information about obesity and weight management is provided, and the nutrition and exercise sections have been expanded. Other new sections cover naturopathy, acupuncture, Chinese herbal medicine, and new alternative therapies currently being tested.

About the Author
Written by a practitioner and her patient.

Gwen White, P.T., has been a practicing physical therapist for 30 years, and specializes in the treatment of women with lymphedema. She lives in Portland, Oregon.

Jeannie Burt, a former lymphedema sufferer, has led an exercise program for women with the condition. A human resources consultant, she is the author of several previously published works of nonfiction. She lives in Portland, Oregon.

Reviews
"...this book’s strength lies not only in its content, but in the spirit of hope it engenders." -- MAMM Magazine

"…focused on patient education and empowerment while compiling a wide range of information and expertise…an excellent resource to clinicians." -- Physical Therapy (American Physical Therapy Association's official publication)

"…incredibly well-written…exactly the information patients want. The low cost makes this information accessible to many people and a real find." -- Oncology Nursing Forum
 

 Lymphedema: Understanding and Managing Lymphedema After Cancer Treatment: American Cancer Society

If you have had cancer treatment, you may be at risk for lymphedema, a buildup of fluid that results in swelling of the arm or leg and other potential complications. Created with the guidance of experts in nursing, oncology, research, and lymphedema care, this up-to-date, practical handbook helps you and your caregiver understand and manage every aspect of lymphedema. Topics include:

.
  • Current recommendations about day-to-day precautions, diagnosis, and treatment.
  • Early symptoms and self-monitoring that can be essential to early diagnosis.
  • Methods of coping with emotional stresses and physical challenges.
  • Practical issues related to work, insurance, and finding and paying for treatment

Lymphedema: Understanding and Managing Lymphedema After Cancer Treatment: offers the information and support you need to cope. You will benefit from this solid and sympathetic discussion of an often-misunderstood and. overlooked condition.

"Lymphedema can be managed if you understand your risks, take proper precautions, and receive treatment from knowledgeable and qualified professionals. This outstanding resource from the experts at the American Cancer Society can help you do just that."
--From the Foreword by Sam Donaldson, ABC News Correspondent, treated for lymphedema of the leg

 

[ Voices of Lymphedema (front cover) ]

Voices of Lymphedema is an exciting book written by patients, therapists, and others who know lymphedema best. As one of the enthusiastic reviewers described it, "This is a must read!" For more information and reviews (including those from the National Lymphedema Network (NLN), plus ordering information click here.

 

 

 

 

[ Living Well with Lymphedema (front cover) ]

Living Well with Lymphedema by A. Ehrlich, A. Vinjé-Harrewijn PT, CLT-LANA, and E. McMahon PhD. “The most comprehensive lymphedema book on the market. Wonderful for patients and those at risk. So many sources tell lymphedema patients what they can’t do. This book encourages us in what we can do!" Tracy Novak

 

 

 

 

[ Lymphedema Caregiver's Guide cover ]

Lymphedema Caregiver’s Guide Arranging and Providing Home Care, by M.K. Kearse, PT, CLT-LANA; E. McMahon, PhD; A. Ehrlich, MA

This book is addressed to both professionals and family members who assist with the care of patients with lymphedema. Sections address such aspects as understanding lymphedema, learning the entire range of care skills, arranging for care, managing supplies and equipment, and avoiding burn-out. Included are detailed illustrations of the lymph system, several pages of resource lists, and copies of forms for planning and organizing all aspects of lymphedema care. At around 450 pages this is a ponderous amount of reading material, but its careful organization allows for quick, efficient reference.
 

 

 

 Thriving After Breast Cancer, Essential Healing Exercises for Body and Mind
 
by Sherry Lebed Davis, Stephanie Gunning, Ann Campbell, and David Ehlert

Reviews
"It is critical for women to start moving right away after treatment and that they continue moving if they are to maintain their mobility. Sherry Davis' approach will make a big difference in the quality of life of women after breast cancer."
--Susan M. Love, M.D., author of Dr. Susan Love's Breast Book

"This book and the program it describes should assist many as they strive for the ultimate goal of therapy--a full, healthful, and active life."
--Clifford Hudis, M.D., Chief, Breast Cancer Medicine Service Memorial Sloan-Kettering Cancer Center

"Women may find her [Davis'] focus on restoring both flexibility and femininity to be just what they're looking for."
--Publisher's Weekly -- Review

"It is critical for women to start moving right away after treatment and that they continue moving if they are to maintain their mobility. Sherry Davis' approach will make a big difference in the quality of life of women after breast cancer."
--Susan M. Love, M.D., author of Dr. Susan Love's Breast Book

"This book and the program it describes should assist many as they strive for the ultimate goal of therapy--a full, healthful, and active life."
--Clifford Hudis, M.D., Chief, Breast Cancer Medicine Service Memorial Sloan-Kettering Cancer Center

"Women may find her [Davis'] focus on restoring both flexibility and femininity to be just what they're looking for."
--Publisher's Weekly

"It is critical for women to start moving right away after treatment and that they continue moving if they are to maintain their mobility. Sherry Davis' approach will make a big difference in the quality of life of women after breast cancer."
--Susan M. Love, M.D., author of Dr. Susan Love's Breast Book

"This book and the program it describes should assist many as they strive for the ultimate goal of therapy--a full, healthful, and active life."
--Clifford Hudis, M.D., Chief, Breast Cancer Medicine Service Memorial Sloan-Kettering Cancer Center

"Women may find her [Davis'] focus on restoring both flexibility and femininity to be just what they're looking for."
--Publisher's Weekly

 

Handwriting for Heros

Here's a new workbook developed by two experienced Occupational and Hand Therapists to help you learn to write with your non-dominant hand. Handwriting for Heroes: Learn to Write with Your Non-dominant Hand in Six Weeks is an encouraging but no-nonsense program for those who are serious about switching dominant sides, whether because of a wrapped arm or RIBP. Daily and weekly practice assignments, tips for assuring success, and plenty of encouraging words are offered in a framework of adult interests and sensibilities – no more first-grade writing tablets and kid-level practice sentences! The workbook is well-organized, clear, and comprehensive. The authors even invite the user to visit their website  to ask questions or report on their progress. It should have been spiral bound for ease in laying it flat, but we tried bending the workbook's spine and that does keep it from becoming a frustration.

 

 

 

100 Questions & Answers about Lymphedema, by Nicole L.Stout, MPT,CLT-LANA, Paula J. Stewart MD,CLT-LANA, and Saskia R.J. Thiadens, RN 
100 Questions and Answers About Lymphedema provides clear, straightforward answers to your questions about lymphedema. Whether it is your or a loved suffering from this challenging condition, this book offers help! Written by three experts in the field, with insider tips from actual patients, this practical, easy-to-read guide shows you and your family how to cope with symptoms, where to get the best treatment, and much more.This book is an indispensable quick reference for anyone facing lymphedema.

 

 

 

 

 

 

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Resources For Supplies

 

 Lymphedema Products
http://www.lymphedemaproducts.com/

We have found Lymphedema Products to be one of the most patient-friendly, helpful, competitively priced internet sources for lymphedema products, with one of the largest selections of garments.

 Academy Bandages
https://acols.com/store.aspx

 For Your Legs
http://www.foryourlegs.com/

Compression Stockings
http://www.compressionstockings.com/
 

BrightLifeDirect
http://www.brightlifedirect.com/
 

 Bandages Plus
http://www.bandagesplus.com/
 

Metro On Line
http://www.metromedicalonline.com/compression-garments.html

 North American Rehab
http://www.northamericanrehab.com/

CancerCare.org http://www.cancercare.org
Will provide lymphedema garments for women or men who are unable to afford them

Cricketts Answer for Cancer
http://www.crickettsanswerforcancer.org/
Will provide lymphedema garments for women or men who have been treated for breast cancer, as they are able
 

 

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Page Last Modified 05/24/2013